Maybe Today?

Today I go in for the PET scan to determine if the cancer is gone. I will not know the results until I meet with the doctor this Friday the 13th!

This fourth chemotherapy has been the hardest treatment yet. They used the same medicines but it was harsher on my body. A little more painful, internally, and longer-lasting exhaustion.

The internal pain is vaguely familiar. I remember once doing daredevil stunts as a kid, we climbed on top of the roof of our garage, then jumped off. When I landed on my feet I felt my guts jar. I’m sure it jostled my diaphragm, kind of an almost-hernia. It didn’t knock the wind out of me but hurt my guts. That’s a little what this feels like.

And my neck pain is not in the back but the front. Again, this is slightly familiar pain. Like when you are trying hard to blow up a balloon that won’t expand. Your cheeks are sore but the discomfort includes your neck and ears.

Dizzy

And the stomach pain is manageable. I still can’t tell if I am hungry or have a sour stomach but a little food every hour calms it down.

All that said, I hope and pray that I am cured. I’ll do what the oncologist says, even if it means more chemotherapy but I continue looking forward to when it’s over and I can be pain-free and drug-free.

“The Lord God took the man and put him in the Garden of Eden to work it and take care of it.  And the Lord God commanded the man, “You are free to eat from any tree in the garden;” Genesis 2:15 (Certain restrictions apply.)

I.V., IV

Today’s chemotherapy might be my last. This morning the doctor reviewed the blood tests showing my cells have recovered from the last round and I can tolerate another. Then she explained in two weeks we do the PET scan to see if there are any remaining cancer cells. If so, I get two more doses. I appreciate a back up plan but firmly expect this disease to be gone now. Expect the best but prepare for the worst. If my prayers are answered and the doctor’s original assertion is correct, the cancer is gone now after four doses.

Today was the typical round of several bags and syringes running from 9:30 am until 3:00 pm. On the way out I rang the bell, signifying my last visit.

So I have the next three weeks to endure the side effects. The next five days involve a racing heart, hot flashes, four hours of sleep at night, tingling fingers, and avoiding sick people because my immune system is suppressed.

For sure the chemo effect is cumulative. At first I thought it would be sick the first week and getting better for the next two weeks, then the next dose. But, each dose make me a little weaker with longer recovery. Last week I felt more tired than ever. So I’ll see how this last one gets me.

“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.” said Jesus in Matthew 11:28

“What does not kill you makes you stronger” Sorry Kelly Clarkson but your famous lyric makes for a catchy break-up song but not real life. What does not kill you makes you weaker. And that’s a good thing.

“Three times I pleaded with the Lord to take it (pain) away from me. But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.  That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.” says Paul in 2 Corinthians 12:8

So, I’m ok feeling like a marionette with half the strings cut. God’s grace saved me, gave me life everlasting, and lets me lean on Him as I walk THROUGH the valley of the shadow of death, stopping to catch my breath.

Last Chemo…

This Friday will be my last scheduled chemotherapy treatment. I’m looking forward to it. I’m familiar with the faces and personalities of the many tech’s and nurses at the cancer treatment center. The layout of the maze-like building is no longer a mystery. I know when and where they are going to poke me with needles. The “beep-beep-beep” alarm will sound at the emptying of each bag of I.V. The friendly volunteers will offer warm blankets and baskets of snacks. My wife will be nearby, reading a book, playing her games, watching me sleep on and off.

Then, before I leave the treatment room at the end of the day, I will ring the bell signaling my last treatment. Everyone there will applaud and I will leave. If my prayers are answered and the doctor’s expectations are met, the cancer is gone and I am on the road to recovery.

But it will still be three weeks of continued side effects. I’m used to the weakness and digestive difficulties and seeing an old man in the mirror.

Soon I’ll get the PET scan to confirm that the cancer is gone…or if I need more. The unknown no longer bothers me. I’m willing to wait and return if necessary. I do not long for the familiar but will do whatever is required to be free of cancer and get back to participating in life: Work, play, rest, create.

I thank God for so many friends who are praying for me and this situation. I do the same when I am in the chair. I pray for these strangers hooked up to bags and tubes. So many are older than me, both men and women. Lord, give them strength and hope and a future.

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call on me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart. I will be found by you,” declares the Lord…Jeremiah 29:11.

What’s It Like?

My wife asked me what does chemotherapy feel like? I had to think. It starts with needle pokes. One in the arm to draw blood. They pull three vials to get the full blood panel. Within 5 minutes they print out a full page report and focus on red and white blood cells. Once they see that I am fit to receive the chemo (I’ve recovered from the last round), then into the treatment room.

This room is the largest in the building with many windows, lots of light and a lot more chairs. Comfortable lounge types. About 60 of them! Each one has side tables and an IV pumping station on wheels next to it. I had to ask “Are these all for chemo?” The nurse explained some people come there for infusions of iron or vitamins and they are there about an hour. But the majority are for cancer patients.

Next comes another poke. “Accessing your port” is a jab of one needle into the surgically implanted bump in my chest. It creates a tube that all the chemicals will pour into. Like a hose, they unscrew one bag and screw another for the next dose.

Finally the last poke. They save this one for the last. This medicine is the prime reason why I don’t feel any nausea or vomiting for five days. It gets stabbed into my belly just beneath the skin. “Sorry but it’s a large gauge needle.” Now I know where they recycle railroad spikes. It hurts going in, then the medicine feels like battery acid, pumping for a few seconds. It even hurts coming out. The worst is over.

The first bag of liquid connected to the port is benadryl to prevent an allergic reaction to the second bag. So for a few hours I slept as they continue to switch bags for six more hours. I was a little hungry so for lunch I enjoyed a sausage McMuffin.

I feel tired and my heart rate is up there but my blood pressure is normal. Home now, I’ve been munching on celery, crackers and dip and cherries. The injections are not done yet though. I have that strange box taped to my arm that will deliver one more dose Saturday at 7:30 p.m. It will cause a flush of white blood cells to grow and replace those that were killed today. I’m instructed to take Claritin right afterward to avoid muscle and bone pain.

So, why go through this pain and discomfort? Why persevere through months of weakness? Because I hope and pray that this treatment will heal me. Hope is my desire. Prayer is offering my desire to God and submitting to His will.

“Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance. Let perseverance finish its work so that you may be mature and complete, not lacking anything.” James 1:2.

Chemo III

It feels like Saturday. We both have the day off today so I can receive my third round of chemotherapy. It’s been three weeks since the last one and I still have a sore spot on my abdomen from the last anti-nausea shot. It’s a small price to pay for stopping the substantial side effects.

My wife and I went out for dinner last night (Thursday) and enjoyed an extraordinary Italian meal at Ristorante Farfalla in Estero.

The restaurant is white-tablecloth-and-candles-reservation-please kind of place. After being seated the maitre d’ very politely asked me to remove my hat. My wife quickly explained the chemo hair loss and it keeps his head warm. He acquiesced and soon they adjusted the thermostat.

Yesterday I went to two different locations to pick up the anti nausea pills and prednisone. Then I hastily planted flowers and spread mulch in the front yard because I had the energy and I won’t for the next few days. Now to pack my chemo day bag: Bottles of water, snacks, book, hat, Kindle, tissues.

It seems like 90% of my head hair has fallen out. Some wispy survivors are clinging on. I went to the dermatologist this week to address lots of sore, red spots on my newly emerging scalp. “Folliculitis” is common in men who wear hats or in some people after shaving. In my case it’s caused by damaged hair follicles and a side effect of corticosteroids. Antibiotic cream is helping. I had hoped for a Mr. Clean kind of scalp but not for now. The hats stay on.

She also froze my nose: Every couple of years she sprays liquid nitrogen on the bridge of my nose to remove precancerous tissue.

My facial hair has also thinned significantly. I’ve been warned not to shave with a razor with blades to avoid cuts. Electric razor only.

Not So Bad

Done with round two of chemotherapy. It only took 6 hours. There were no surprises, and no allergic reactions like the first time. I ate, I drank, I slept a little (Benadryl nod) and now I feel just a little groggy. They have managed the side effects very well.

Good news: Doctor reviewed today’s blood test and my numbers are better than ever. Red and white blood cell counts are up! My immune system is intact and working. Therefore, no need for the mask…after five days. During that time I’ll be on a steroid that instructs “avoid people with contagious diseases.”

Image result for image robot with ray gun

I got shot by a robot. The last thing they did to me was install a “single shot, on-body injector” on the back of my arm. It’s 2″ x 2″ plastic box stuck on with tape. It lit up, beeped a few times and SNAP, this little needle stabbed me and will remain there for 28 hours, when it slowly releasing medicine tomorrow. This goop is designed to elevate the white blood cell count to prevent infections. It is made from an extract of e-coli!?

Speaking of head-scratching information: My new anti-nausea medication says “It is used to treat anxiety…upset stomach and throwing up..(and) to treat schizophrenia. It may be given to you for other reasons.” Like what, fleas, knobby knees and hiccups in threes? Who said that?

Chemo II

I’m going in this morning for the second round of chemotherapy. It should be an all-day affair. I have my choice of days to do this but they recommend Fridays so I can rest and recover over the weekend.

Three weeks has passed since the first dose. And, almost to the day, most of my hair has fallen out. It’s as if the hair has died and gradually broken off. Today I look like a cancer victim: patches of hair randomly cling on but are slowly surrendering. I’ve never seen my scalp before. It’s kind of shiny and itchy and feels nude.

I’m nervous about this treatment because the first time I felt strong and healthy. Now I am weaker. I’m assuming I’ll feel the cumulative effects of the various toxins later today.

Good news is, after today, I am half way into the four-dose program. Each one will be three weeks apart.

The day before yesterday I got a second echocardiogram. The first one was two weeks ago in the ER because of high blood pressure. But this one was ordered by the oncologist and was more area-specific. They measured the size of my heart, volume of blood flow, strength of the pumps, direction of flow, and so much more. They want to make sure the chemo does not damage one of the aortas so they’ll be tracking all these stats in the coming months.

Poisoned, but OK

Poison: a substance that is capable of causing the illness or death of a living organism when introduced or absorbed. Yeah, that’s chemotherapy.

As a cancer survivor (I choose that label over patient or victim) I’d rather not talk about death but it’s necessary. I have cells in my body that are growing out of control. If I ignore them they will kill me. So, my choice is to kill them first. Following the advice of two medical professionals, we are chasing after these rogue cells with a variety of poisons.

Non-Hodgkin’s Lymphoma is a type of blood cancer, similar to Leukemia, but located in my lymphatic system (not bones), so injecting these medicines into my blood system gets right after them directly. No creams, no pills, no surgery.

What is this toxic cocktail?

1. A vesicant; causes extensive tissue damage. It stops cancer cells ability to multiply and they die. It’s classified as an antitumor antibiotic and is made from natural products produced by a soil fungus Streptomyces! Unfortunately it is indiscriminate and other body cells get beat up too. Cells in the mouth, stomach, bowel and hair follicles result in infamous side effects.

2. A multiclonal antibody. Causes rapid destruction of cancer cells. This targeted antibody attaches to the cancer cells and marks them for destruction by the immune system.

3. An alkylating agent damages a cell’s ability to copy itself. When cells are unable to divide, they die.

4. A plant alkaloid. Now you’re talking my language. This class of chemotherapy drugs can come from Vinca (Periwinkle) and the Pacific Yew (Taxus) and the May Apple or the Asian Happy Tree (Camptotheca) They also stops cells from dividing.

Sure, each one of these components has it’s own side effects but they should only last as long as the treatment. In my case about three months. Looking forward to April.

Chemo Day

Good news: I did not eat cookies, so I did not toss them.

I’ve heard and read stories of chemotherapy reactions; Nausea, vomiting, pain, seizures, fever and more. But none of them happened…yet.

Preparing for the treatment.

Today’s massive regimen of medicines were designed to avert those issues and still kill the cancer cells. It started by swallowing two pills that interfere with the vomiting signals for 5 days. Add two Tylenol. Then along came this massive hypodermic needle piercing my abdomen to stop nausea.

The first bag of liquid rinsed the IV port and line, then on with the meds: Five of them. The component package is called R-CHOP. Each letter of the acronym represents a different medicine. The first bag that took about four hours tested my ability to tolerate the others. Nurses said the first hour is when the patient would react negatively. It started off at a weak strength and increased by 50 cc’s every ½ hour. Mid way I started to develop a mild allergic reaction: Sore throat and itchy inner ears that felt exactly like hay fever. But they unplugged it, gave me something to counteract the reaction, pumped some saline, then continued at a lower strength, eventually draining the bag with no more issues.

Then came the “red devil”. This raspberry Jello-looking goop was too thick to drip through the lines so they “pushed” it with this wide plastic syringe into the IV lines. Finally, other pouches of clear liquids concluded the day.

I had a normal hunger and thirst all day although I felt groggy. Volunteers wandered through the treatment room offering snacks, drinks and warm blankets. The chair was a comfortable recliner and I was instructed to bring along any food, book, or entertainment device. I slept on and off.

The treatment took 9 hours. We opened and closed the joint.

On the way home we picked up a prescription to prevent nausea and Prednisone. Doctor says it will make me energetic, hungry, sleepless and in five days I will crash.

To play it safe I’m enjoying oatmeal for dinner.

Drip.

Six hours into a 9 hour treatment. Note to self: When you tell the nurse “I feel a little funny”, three of them will suddenly surround your chair, disconnect the chemo, hit you with a shot of Benadryl and a steroid. The itchy throat immediately vanished. Then some saline for a break and back to the bag.

My shadow. Emotional support IV rack.